The Story Of George's Life So Far.

Monday 16 January, 2006

George Eden-Taylor:

Born:16/01/06

Weight:1.1kg=2lb 7oz

     Mummy and Daddy

     (Natasha and Shaun)

Helping You Understand.

Monday 16 January, 2006

These month's and year's are how we believe George's thoughts and feeling's are. This is  how we believe he See's the rest of the world, I hope we interpret it right and you can get more of an understanding of what our precious son has been through, how he continues to go through but also how much he enjoys life, and how  we feel blessed, he brings us so much heartache but has also brought so much happiness too.

He is a little character and once he gets to know and like you he opens his heart and let's you in, so now we're going let you into his heart.

Please don't feel sorry or sad when you read this as it's not there for that, it's here to help you understand how a child with C P (Cerebral palsy) lives and how happy they can be once they have there difficult start out the way and they start to work towards there future. 

The Day I Arrived Into The Big Wide World.

Tuesday 31 January, 2006

Hello my name is George Eden-Taylor. Well I don't know really where to start, but first of all thank you to my Mummy and Daddy for my name, George is such a strong name, and i think it really suits me.

January may be a longer start than my other month's because life was Hectic for me and such a struggle, but i wasn't going to give up with a name like George.  

I was born at 01:49 on the 16/01/06 at Nottingham city Hospital, a little inpatient (12 week's Early) Sorry, Mummy and Daddy i just couldn't wait to meet you. I'm really sorry but i can't go into my birth too much cause Mummy and Daddy have a legal case ongoing, once everything is all sorted I'll let you know. All I can say is that i cried when i was born and had an apgar score of 7 out of 10 at birth which is excellent for a premature baby, but then thing's didn't  go quite as planned. 

I never got to see Mummy and Daddy although I was in the same room for 50 minutes, I was then whisked  away to the NICU (Neonatal Intensive Care Unit) when a lady came and took some photo's of me for Mummy and Daddy, little did i know what these photo's would mean to them.

I first met them at about 04:00, I could tell they were frightened cause I had all tube's coming out of me, they were helping me to breath, i opened my eye's to my Daddy when i heard his voice, i was so pleased to see him, Mummy held my hand, they had to go shortly after as I needed my rest.

I wanted to tell them i would be OK, so i decided to try to breath all by myself, so when they came down to see me later they were so Happy. The Doctor's said i was doing so well, but later the next morning i got so tired i needed help again, this time Mummy and Daddy were woken and told to come and see me.

I was so weak, they were told I may not make it and they should be prepared, but i saw them say NO!. So that was it the fight was on.                      

The rest of this month was up and down, I was transferred over to QMC Nottingham after a few day's so they could do some investigation's. I was took for a Tracheostomy (tube in my throat to help me breath) I decided in theatre that i didn't like the sound of that, so i tried harder at my breathing. A very kind surgeon (Mr Gibbons) decided to give the chance to breath all by myself. I did well again for a while then needed C-PAP (this help to keep my lung's inflated) The nurses kept me stable for the rest of the month.   

February

Tuesday 28 February, 2006

This month was a tricky one for Mummy and Daddy, I think they were slowly going insane. They eventually got to cuddle me, which i really enjoyed, I still needed C-PAP, but started having time off, this is when i had to breathe all by myself.      

This was the start of me having what is called in medical term's (DE-SAT this stands for desaturations) this is where my oxygen level's drop and I need more oxygen. I hated these as sometimes i would go so blue that I would need bagging (this is a mask with a bag on, its pumped by the hand)Mummy and Daddy got so upset at this but i just wasn't strong enough at times.

 I started having milk through a tube that went down my nose into my tummy, I did really well with this and started gaining weight.

March

Thursday 30 March, 2006

For some reason this month I started not to tolerate my Mummy's milk, I had reflux. The doctor's also noticed that my co-ordination around my mouth was not good, I didn't have  much control over my tongue, and I just couldn't swallow, I wasn't sucking my dummy although I really did want to, Mummy did lot's of stimulating thing's to try to encourage me.

George saying Hi below:

Mummy and Daddy found out this month that I some brain damage to the area called the Basel Ganglia, as i was sent for an MRI scan, luckily this shown damage in only that area and the rest of my brain looked OK, which is where i get my Athetoid Cerebral Palsy.

One good thing  that happened this month was I moved to a big boy's cot..